Wednesday, December 26, 2007
One of these handouts, created by the ASA and the American Association of Nurse Anesthetists, is Patient Awareness Under Anesthesia - What Is It?
"The brochure explains what awareness under general anesthesia is and isn¹t, and why it can happen. It discusses what researchers and health care providers are doing to lessen the chance of this rare event and offers guidance to patients for discussing concerns about awareness with their anesthesia professional."
This brochures is available in .pdf format and is also available in Spanish.
Wednesday, November 21, 2007
NSIDRC is co-located with the Maternal and Child Health Library and draws on the library's extensive resource capacities and public health perspective. The new NSIDRC will continue the work of the National SIDS/Infant Death Resource Center, serving as a central source of information on sudden infant death (including sudden infant death syndrome, miscarriage, stillbirth and other sudden infant deaths), on bereavement, and on promoting healthy outcomes for infants from the prenatal period through the first year of life and beyond.
The website provides access to this information in an easy-to-use format. Searchable databases and special issues of the MCH Alert with a focus on infant mortality will be available soon.
NSIDRC is also accessible by calling (866) 866-7437 (toll-free) or (202) 687-7466 (local), or by e-mailing firstname.lastname@example.org
Friday, November 16, 2007
"How to Quit Smoking" is available in 16 languages including Arabic, Bosnian, Chinese Simplified, Chinese Traditional, English, French, Hindi, Japanese, Korean, Portuguese Brazilian, Russian, Somali, Spanish, Tagalog, Ukrainian and Vietnamese.
The fact sheets are in .pdf format and include the foreign language and the English translation. Fact sheets are also copyright free so you may make additional copies as needed! Woohoo!
Monday, October 22, 2007
The fact sheet covers causes, risk factors, types of pressure sores, treatment, and prevention. There is no English counterpart to this document.
Friday, October 12, 2007
"Who is a caregiver?",
"Asking for help",
"Caring for yourself",
"Going with your loved one to medical visits", and
"Talking with others".
This document is available in html and/or .PDF format This booklet can also be ordered for free in print.
Tuesday, October 9, 2007
that nearly half a million copies of each will be distributed to Cancer Centers and health professionals annually.
The booklets focus on the most common treatment side effects and ways to manage them. Each side effect has its own section describing what it is, why it occurs, ways to manage and ways to obtain more information. the new formats are user-friendly. Written in plain language, they feature a larger font size and contain more white space for readability. They have also been resized for easier photocopying.
These documents can be viewed in html and/or downloaded in .PDF format.
Monday, October 8, 2007
Copies of these fact sheets can be viewed in html or downloaded in .PDF format. They can also be ordered for free in bulk quantities.
Friday, September 14, 2007
Thursday, August 30, 2007
The first is "What I Need to Know About Celiac Disease". This easy-to-read, 20-page booklet, discusses the symptoms, diagnosis and treatment of celiac disease and provides some brief nutritional information related to a gluten-free diet. This brochure is available free of charge on the web and can also be downloaded in .pdf format.
The second resource is "Celiac Disease News", a summary of the latest news both in the medical literature and the popular press, related to Celiac disease. This newsletter can be accessed online in .pdf format or patients and their families can subscribe to the newsletter and receive the document by email.
Currently, these resources are available in English only.
Monday, August 20, 2007
Friday, August 17, 2007
Saturday, August 11, 2007
The fact sheet provides 11 suggestions for dealing with the physical and emotional side effects of chemotherapy.
Monday, July 30, 2007
Available both in English and French, each stretching video takes about 10 minutes and is led by a certified fitness consultant and yoga instructor. As their website describes, "The exercises in these videos are designed to counter the effects of sitting at your desk by focusing on stretches for your back, neck and shoulders. The exercises come in stages so that you can work on different parts of your body. Most of the exercises can be done right in front of your computer monitor. No need for special clothes or equipment."
The Alberta Centre for Active Living is affiliated with the Faculty of Physical Education and Recreation at the University of Alberta.
Thursday, July 12, 2007
NMDP publications include:
"Forward! Living Life after Transplant"
"This educational magazine and DVD helps teens and young adults know what to expect before, during and after transplant. It features five young transplant recipients who share their journey and offer advice for dealing with physical and physiological changes, as well as relationships, school and self-image post transplant."
"The Paths to Progress"
"This bilingual audio CD uses easily understood language to explain the transplant process. It was created to reach people who learn by listening, Mandarin speakers and people who are English language learners."
"Discovery to Recovery: A Child's Guide to Bone Marrow Transplant"
"An award-winning educational, interactive DVD and booklet for children ages five to nine who will be undergoing a marrow or cord blood transplant. The DVD tells the transplant story through two engaging puppets and provides interviews from children and their families who have been through the transplant process. The accompanying booklet is designed as a supportive tool to promote transplant discussion within the family."
Tuesday, July 10, 2007
Friday, July 6, 2007
This publication, entitled Thinking About Complementary and Alternative Medicine, features:
Basic descriptions of CAM modalities.
Guidance for evaluating CAM information.
A list of reliable CAM resources.
Tips for talking with traditional healthcare providers about CAM. Suggestions for finding certified CAM providers.
Free copies of "Thinking About Complementary and Alternative Medicine" are available online for viewing or downloading in .pdf format. This resource is available in English only.
Friday, June 15, 2007
NCI will use the comments to identify information that needs to be updated, changed, or eliminated from the new version.
If you are interested in reviewing this resource and can do so by July 6, please contact Lorna Patrick at PatrickL (at) mail.nih.gov
Wednesday, June 6, 2007
The entire 224-page document is available in its entirety or available as individual topics. Downloadable individual documents include patient forms (durable power of attorney and living will templates for Massachusetts and Rhode Island), topics related to cultural competency such as tips for office staff to enhance communication between staff and patients, physician resources such as articles, quizzes and talking points, and resources for patients such as FAQs about durable power of attorney.
Tuesday, June 5, 2007
The National Cancer Institute is looking for volunteers to help pilot test La quimioterapia y usted, a Spanish revision to Chemotherapy and You. For this pilot test, NCI needs patient educators who treat and educate chemotherapy patients for whom Spanish is their native and preferred language. The pilot test will help NCI ensure that this new resource is a helpful educational tool for health professionals and meets the needs of Spanish-speaking patients.
The purpose of the pilot is to determine:
If the rewritten version of La quimioterapia y usted is a useful teaching tool
Your patients’ reactions to the content and presentation of the material
Your reactions to the usability of the book in patient education
Your patients’ ability to understand the terms, suggestions, and instructions that include English/Spanish vocabulary
If you or your colleagues are interested in participating in the pilot test of this book, please contact Karina Jimenez at ORC Macro, Project Manager, for detailed information at Karina.D.Jimenez(at)orcmacro.com or (301) 572-0303.
Monday, June 4, 2007
The Toolbox includes ten modules. Modules 1 through 6 cover six basic skills:
Finding Information/Búsqueda de información
Making Decisions/Toma de decisiones
Solving Problems/Solución a los problemas
Standing Up for Your Rights/Defensa de sus derechos
Modules 7, 8, 9 and 10 build on the skills learned in the first six modules and relate them to specific aspects of cancer survivorship. These three modules cover:
Topics for Older Persons/Temas para la tercera edad
Finding Ways to Pay for Care/Búsquedas de alternativas para pagar los cuidados
Caring for the Caregiver/Cuidados para el encargado del paciente, and
Living Beyond Cancer/Vida después del cáncer
The public can listen to the 10 modules in Spanish or English directly from the website, can download them as MP3 or Real Audio files, or can order the modules on CD at no cost.
Thursday, May 31, 2007
Wednesday, May 23, 2007
Monday, May 21, 2007
Saturday, May 12, 2007
Listen to the stories of three people who are having a difficult time with information on mammography and breast health, medication compliance, and details related to their job-sponsored health benefits program. Learn about providers who work to help them navigate their way, and test your knowledge regarding the strategies and practices that can assist persons of all literacy levels.
"Health Literacy: New Field, New Opportunities" includes sound and requires the use of Flash plug-in.
Tuesday, May 8, 2007
Friday, May 4, 2007
Friday, April 27, 2007
AD Lib is fully searchable and integrates the AD Thesaurus of over 2,000 index terms that searchers can use to browse the collection.
Users also have access to frequently searched topics and other AD health information databases.
The AD Lib collection includes nearly 8,500 fact sheets, books, textbook chapters, journal articles, brochures, teaching manuals, directories, videos and other media, bibliographies, program descriptions, monographs, newsletters, and reports that are available from a wide variety of sources.
Monday, April 23, 2007
Produced by the Agency for Healthcare Quality and Research, this 17-page brochure in English, is available free of charge in .pdf format. In addition, up to 10 print brochures can be ordered free of charge from AHQR.
Friday, April 20, 2007
Share your own feelings
Start the conversation
Tell them in concrete terms what will be done to make them feel safe
Be truthful about the news but do not go in to more detail than your child wants to know or can absorb
Carefully monitor exposure to violence over the television - if necessary, turn it off
Tuesday, April 17, 2007
What would your responses to the following sample questions?
Some symbols-a positive nod of the head, a pointing finger, a "thumbs-up" sign-are universal and can help bridge the language gap.
When a provider expects that a patient will understand a condition and follow a regimen, the patient is more likely to do so than if the provider has doubts about the patient.
Minority and immigrant patients in the US who go to traditional healers and use traditional medicines generally avoid conventional Western treatments.
Friday, April 13, 2007
This full-color brochure in .PDF format is available in English and in Spanish.
Tuesday, April 10, 2007
It's not often that you are told a research scale may be used "at no cost without permission" but thanks to the Stanford Patient Education Research Center (SPERC) and their funding from the National Institute of Nursing Research, over 30 scales have been made available to you at no cost and without permission!
The SPERC scales were developed, adapted or used by the staff of the SPERC who, over the past 24 years have developed, tested, and evaluated self-management programs for English and Spanish speakers with chronic health problems. Among their projects have been the evaluation tools available in both English and Spanish and they have made them extremely accessible. Via their website, SPERC gives you the items, their properties (if available), and coding and scoring instructions. They are also available as downloadable PDF files (using the PDF link at the bottom of each page). The tools are divided into six categories: Self management behaviors, self-efficacy, health status, health care utilization, education, and diabetes-specific scales. Instruments include "Arthritis Self-Efficacy", "Eating Breakfast with Protein", Visits to Providers", and "Shortness of Breath Visual Numeric".
Although these instruments are available to you free and without permission, do not neglect to give credit to SPERC when utilizing these tools.
Monday, April 9, 2007
Do you want to learn more about clinical trials?
Do you have an interest in becoming a trial investigator?
Then you should consider the National Cancer Institute’s Clinical Trials Education Series to help you. CTES is a collection of more than 20 multimedia resources to educate cancer patients, health care professionals, advocates, and the general public about cancer prevention and treatment clinical trials.
The series contains materials in several formats, all of which can be adapted to fit your needs:
- Resource and training manuals
- Slide presentations
- Booklets and brochures
The series includes Spanish language resources, easy-to-read materials, and a Web-based course for health care professionals. To order FREE materials, call 1-800-4-CANCER or download them for free. Slide presentations and print materials are also available on a CD, which can be ordered from the Web site.
Sunday, April 8, 2007
The National Network of Libraries of Medicine (NN/LM), in cooperation with the Consumer Outreach Librarians, has compiled a webliography of consumer health resources in a variety of languages.
If you have an interest in pediatric patient and family education, Partners in Pediatric Education (P.I.P.E) may be the group for you! In its third year, P.I.P.E., a partner of the Health Care Education Association (HCEA), "is a national forum comprised of dedicated interdisciplinary pediatric educators who work cooperatively to help improve healthcare education in the field of pediatrics."
Saturday, April 7, 2007
We hope you enjoy this blog and we welcome your comments.
The Staff of "Patient Education Matters!"